In May 2010 we had a beautiful baby boy. He was perfect in every way and to us, still is. He failed numerous hearing tests and was eventually, at almost 6 months, diagnosed with a moderate to severe hearing loss and fitted with hearing aids on both ears. In January 2015 he fell and hit his head. After an uneventful evening at A&E he went to bed later than usual but, we thought, fine. He woke up profoundly deaf. 2 months later he was fitted with cochlear implants which he has taken to beautifully. He has excellent speech and is a clever and kind little boy.
In March 2012 we had a beautiful baby girl. She, at just 5 weeks, was diagnosed with a severe to profound hearing loss. At 11 weeks she was fitted with two hearing aids and a month before her second birthday she had surgery for cochlear implants. Unfortunately, during the surgery she lost her vestibular system and so all of her balance. She has re-learnt to walk and run and climb using only her sight and her touch. She’s a freaking powerhouse of determination and nothing is going to stand in her way.
They are deaf because of a genetic syndrome inherited from myself and their father. No-one in our families are deaf so the gene has lay hidden, secret, for generations. There’s a 25% chance that any child of ours will be deaf. I cannot tell you my heart ache when it happened twice. Or, when, in November 2014 we had a third baby who can hear. She is a carrier so may well one day, like us, have deaf children of her own.
I have always baked my way through stress; exams, break ups, unrequited love. And so, you can imagine, I baked my way through my babies’ first weeks, months and years. As a result they loves to cook. So now we bake together. Coping with deafness and all the other obstacles life insists on throwing at us, one cupcake at a time.